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Huge day for America. Not a political statement. This is a Childhood Cancer statement. A my son with cancer statement. Just to be clear!!! But. Today in our reality we find out when the brace comes off. Weaning out of it. X-ray and neurosurgeon appointment this afternoon. And if humans aren’t raging assholes of some sort, we’ll get to leave the city just fine. I’m definitely sick of that worry on top of all the others I have when we come here. Isn’t cancer enough????

by | Jan 20, 2021 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP

Huge day for America. Not a political statement. This is a Childhood Cancer statement. A my son with cancer statement. Just to be clear!!! But. Today in our reality we find out when the brace comes off. Weaning out of it. X-ray and neurosurgeon appointment this afternoon. And if humans aren’t raging assholes of some sort, we’ll get to leave the city just fine. I’m definitely sick of that worry on top of all the others I have when we come here. Isn’t cancer enough????

by | Jan 20, 2021 | From The Road

from Life with our little Super Hero Adler Bear https://ift.tt/3p0URbq

He woke with a headache today. Weather maybe, chemo maybe, no matter I got the diffuser going with It’s All In Your Head oil in it. Turned down the lights and I asked if he wanted a bunch of guys to hold. He smiled and said “Sure if you want to”. So I did. And as I was looking for a specific one I shook the blanket and a couple fell out. One being Knuffle Bear named that because he had a bunny just like the bear and called it that after the book. I read that to him all the time, Knuffle Bunny, a great book!!! Anyway….. That bear was with Adler upon his first trip to the ER at Lurie Children’s Hospital. He was 4 and so sick and in so much pain. That was the trip that would determine his hydrocephalus and the tumors. We wouldn’t leave for a week after that. That bear was with him the entire time and the nurse that checked him in also checked the bear in too. That’s the band around his arm. We’ve never taken it off either. Never will. I touched it remembering when they put the band on him and on Adler. Sweet little Adler. Such a journey.

by | Jan 17, 2021 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP
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