by | Jul 31, 2020 | From The Road

from Life with our little Super Hero Adler Bear https://ift.tt/30fWgRr

After the 4th chemo, which this was, his hair began to fall out. You can see his scar from his shunt so well here because he started chemo only about two months after his surgery. I cried in the shower with him as it was between my fingers when I washed his hair. It made it real. Very real. I dried him and it was all over him. I called for Aaron to get a new towel as I shook finishing. Soon enough we would take him to get his head shaved. And then his eyebrows and eyelashes fell out too. Nothing can prepare you for the “little” things that go along with the “big” things of cancer that stick with you forever. Our 4 yr old warrior.

by | Jul 31, 2020 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP

After the 4th chemo, which this was, his hair began to fall out. You can see his scar from his shunt so well here because he started chemo only about two months after his surgery. I cried in the shower with him as it was between my fingers when I washed his hair. It made it real. Very real. I dried him and it was all over him. I called for Aaron to get a new towel as I shook finishing. Soon enough we would take him to get his head shaved. And then his eyebrows and eyelashes fell out too. Nothing can prepare you for the “little” things that go along with the “big” things of cancer that stick with you forever. Our 4 yr old warrior.

by | Jul 31, 2020 | From The Road

from Life with our little Super Hero Adler Bear https://ift.tt/30gXLPc

It was a long day at the hospital but we are home and settled back in until next month. This was just a monthly check up and med pick up. -We discussed his episodes of near fainting/nausea and stomach issues which they feel is vasovagal syndrome…..Google it….. -Labs were good but keeping an eye on his liver enzymes, side effect of the drug. -Arms are coming but there may be some vascular/nerve issues that will be further discussed with the neurosurgeon later on. -Fatigue still an issue but it’s also the #1 side effect. Endocrinologist will weigh in next month after labs on that as well as puberty stuff which we decided to not intervene with that a couple months back. Let nature take it’s course. It’s early due to his hydrocephalus and shunt placement and typical for patients like him. But he’s up almost 3lbs and I have no idea how because he’s still not tolerating food much at all. It’s hard to imagine it will be a year of treatment in September and that he still has 14 months after that. Cancer is one hell of a monster to live with but live with it we do.

by | Jul 30, 2020 | Updates From the Road

from Life with our little Super Hero Adler Bear https://ift.tt/3aDpcoP

by | Jul 30, 2020 | From The Road

from Life with our little Super Hero Adler Bear https://ift.tt/30g1Nrj
X