About Us
Adler Bear Carris is 9 years old battling inoperable metastasized pilomyxoid astrocytoma metastasized brain cancer. He has been battling since he was 4 years old.
He also has hydrocephalus and adrenal insufficiency. He suffers with daily chronic pain as well and we just got the news that his tumor in his cervical spine has grown. Adler had his 6 month MRI and it showed a change. His oncologist took it to the tumor board and after two meetings, they agreed it’s time to do something as they looked back over two years and agree it’s been slowly growing since. It was very hard news to hear especially because of the continued pain he’s been in.
They did a biopsy of his cervical spine testing for the BRAF mutation and if it’s positive for they will treat it accordingly with oral chemotherapy. If it’s not that, Adler will need a port placed again and he will have IV chemotherapy treatment again. Again.
And unfortunately the 5+ hour surgery left him without the use of his arms. He’s now in day rehab for occupational therapy and physical therapy to hopefully regain the use and strength in his arms. It was bad enough that his walking has been hindered by pain for so long and now his arms don’t works so well. How much more freedom will cancer take from him???
His strength is endless and his love and light are contagious but this journey has been long, taxing and just absolutely exhausting. Physically, emotionally and financially. And the out of pocket cost after insurance cuts you off with only 20 PT and OT visits a year, is ridiculously expensive. But he needs it. So we have to continue his care. And the travel to and from Chicago will be repetitive for a very long time. There is a finish line here somewhere……
We appreciate the continued love and support. Thank you.